Here are 4 tips to set up your smartphone so you’re prepared for a sudden trip to the ER.
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Be ready to soothe minor emotional cuts and scrapes. These five tips can help you prepare a mental health first aid kit.
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The Penguin Plunge of Nyack was never meant to be an "annual" thing; it was just a couple of friends who wanted to put together a one-time winter plunge into icy Hudson River waters in southern Rockland County. If we were going to do something that crazy, we figured we should do it to raise funds for a good cause.
Read about the importance of supporting employees who are also rare disease caregivers. Gina D. Wagner argues that employers must address their needs and implement significant changes in the workplace, and offers five ways organizations can create a balance between work and life for these caregivers.
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Families affected by rare genetic disease may have questions about whether others in the family will develop the disease, particularly if they or their children are affected. Here is some advice from a genetic counselor.
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How do you go about finding an expert who understands your rare disease and can answer your questions? Where can you find more information on your condition to share with the specialist(s) helping with your care? Unlike most diseases, in rare disease, the doctors conducting the clinical trials are usually the leading experts on that rare disease. This is because there may be so little information available on a particular rare condition that anyone studying it becomes a top expert almost by default.
Here are some recommendations from people who have learned how to find the experts and information they need.
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7 tips for finding the right clinical trial for you and how Know Rare makes it easier to find a clinical study and talk to a researcher.
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Ambiguous Loss is unique in that people facing this kind of loss are denied traditional closure rituals and acknowledgements, like memorials and respite periods, as well as typical social support and bereaved status. They are expected to carry on as usual, and may be stigmatized when they do not.
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Pre-procedure anxiety is a normal part of the medical process. In fact, up to 80 percent of surgical patients are reported to experience anxiety before operation.
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