Be ready to soothe minor emotional cuts and scrapes. These five tips can help you prepare a mental health first aid kit.
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Patient-reported outcome measures (PROMs) provide a missing link. They help healthcare providers understand the impact of living with a disease on terms that matter to you.
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Learn about Mind-Body Interventions (MBI) and how they can help with FSGS symptoms.
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Discover the benefits of yoga and how it can help with FSGS symptoms, and find out how to get started with a yoga practice.
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How can we advance knowledge research for a rare disease when there are so few patients? One important way is through a patient registry. Learn more about what a patient registry is and why should people with a rare disease join one.
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